Sunday, January 23, 2011

First of many posts ... Day 1

Hello,

I am only but one of over 300,000 Americans that suffer from Chiari Malformation  in the US alone.  This page has been created for everyone that suffers from chiari, loves or knows some one with or is just interested in learning about this not rare ... but unknown and under treated un-curable disorder. 

The goal of this page is to use the great world wide web to bring more awareness and knowledge to its readers.  There are several others right now using the (#chiarimalformationsucks) trend hopeful on Twitter.  Through Facebook and other groups we hope to get the word out. 

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